Ebony has been living at one of Hightown's temporary housing schemes for two years and is now successfully moving on to independent living. Ebony wanted to share her story of living with epilepsy during Epilepsy Awareness Week.
Tracie Caswell, Senior Support Worker, said:
"At the beginning of Covid, Ebony's epilepsy worsened, possibly due to the anxiety this caused, and she was often angry and tearful. Instead of doing lengthy link work with her, we spilt them into several short sessions a week as this helped her to manage her emotions. Ebony's friend also visited when she was feeling anxious and kept us up to date with any recent fits and triggers. Over time, she was also able to sort out her finances and her self-esteem grew. This gave her the confidence to feel ready to move on.
"I was diagnosed at the age of 17 after my first seizure. Since then I have lived my life waiting for the next seizure. I get 10 seconds warning to get on the floor and after a fit it can take me days to recover. I can't do things someone my age would normally do. I would love to go to a festival or a concert but the flashing lights are a no, no. I'd love to sunbathe or visit a hot country but temperature can bring on a seizure. I'd love to drive or simply have a bath.
"Any minor illness has me cancelling plans and just waiting for a seizure, the more I panic or get anxious the more likely it is to happen. My friends are great and they are all aware but when I fit I lose all control and it’s embarrassing. That itself can stop me from living the life I want for myself.
"However, I am now ready to live independently and I'm excited to be in my new flat in a few weeks to start the next chapter of my life."